CYSTIC FIBROSIS FOUNDATION is a Missouri nonprofit corporation, registered on July 11, 1958. It is based at 221 BOLIVAR STREET, JEFFERSON CITY, MO, 65101, United States. The company is currently listed as active on the Missouri register, is registered under company number E00000068 and carries EIN 131930701. Its officers and directors on record include Kate O'Donnell, Michael P. Boyle , MD, Dodzie Sogah , Ph.D, among 19 on file. Its E-Verify enrollment reports a workforce of 500 to 999 employees, hiring at 1 site in Maryland. Public records for the company include 1 SoS registration, 11 permits, 4 licenses, 5 H-1B filings, 3 E-Verify records, 2 non-profit filings, 2 copyrights and 16 Form 5500 filings. Every fact here is republished from an official public register and traces back to a primary source document.
| Legal entity name | CYSTIC FIBROSIS FOUNDATION |
|---|---|
| Former names | NATIONAL CYSTIC FIBROSIS RESEARCH FOUNDATION |
| Principal address | 221 BOLIVAR STREETJEFFERSON CITY65101MOUnited States |
| Mailing address | 4550 Montgomery Ave., Ste. 1100 N, Bethesda, MD, 20814, US |
| Registration state | Missouri |
| Status | Active |
| Formed in | Delaware (foreign registration) |
| Home company | CYSTIC FIBROSIS FOUNDATION |
| Registered | 11 July 1958 (about 68 years ago) |
| Officers & directors |
|---|
| Kate O'Donnell, directorMichael P. Boyle , MD, officerDodzie Sogah , Ph.D, directorDominic J. Caruso, directorSteven Shak , MD, directorEric R. Olson , Ph.D, directorDavid A. Mount, officer, directorLouis A. DeFalco, directorJessica H. Boyd , MD, directorRobert H. Niehaus, directorTeresa L. Elder, directorEric C. Schneider , MD, directorJohn S. Weinberg, directorElise Eberwein, directorPaul a. Motenko, directorKC Bryan White, directorCarole B. Griego , MD, directorMichael Cavadel, officer |
| Entity type | Nonprofit corporation |
|---|
| Standing | compliant |
|---|
| Company number | E00000068 |
|---|
| EIN | 131930701 |
|---|
| LEI | 549300KM16F0HKE5YG28 |
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| Employees (modeled) | ≈840 employees2024 |
|---|
| Workforce size | 500 to 999 employees · updated 12 July 2025 |
|---|
| Hiring sites | 1 site in Maryland |
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| H-1B filings | 5 LCA filings, FY 2017–2025 |
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| Registered agent | UNITED STATES CORPORATION CO |
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| Source registry | Missouri Secretary of State · updated 20 July 2026 |
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| Public records | 1 SoS registration |
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| Est. revenue (modeled) | $326.2M2024 |
|---|---|
| Nonprofit | Yes · 1 IRS filing |
| IRS exempt status | 501(c)(3) · ruled November 1957 · contributions deductible |
| NTEE category | G200 · Diseases, disorders & medical disciplines |
| Revenue (IRS) | $355,798,320 · tax year 2024 |
| Income (IRS) | $1,863,238,088 · tax year 2024 |
| Assets (IRS) | $4,986,222,387 · tax year 2024 |
| Form 990 filings | 1 return · latest 990 (2017) |
| State | Business name | Filed | Registered agent | Officers | Status | |
|---|---|---|---|---|---|---|
| MissouriTHIS | CYSTIC FIBROSIS FOUNDATION | 1958-07-11 | UNITED STATES CORPORATION CO | Kate O'DonnellDirectorMichael P. Boyle , MDOfficer16 more | Active | |
Filing ID E00000068 Jurisdiction Foreign · Nonprofit corporationFormed in Delaware Principal address 221 BOLIVAR STREET, JEFFERSON CITY, MO, 65101, United States Registered agent UNITED STATES CORPORATION CO Officers Kate O'DonnellDirector Michael P. Boyle , MDOfficer Dodzie Sogah , Ph.DDirector Dominic J. CarusoDirector Steven Shak , MDDirector Eric R. Olson , Ph.DDirector David A. MountOfficer, Director Louis A. DeFalcoDirector Jessica H. Boyd , MDDirector Robert H. NiehausDirector Teresa L. ElderDirector Eric C. Schneider , MDDirector John S. WeinbergDirector Elise EberweinDirector Paul a. MotenkoDirector KC Bryan WhiteDirector Carole B. Griego , MDDirector Michael CavadelOfficer | ||||||
| Alabama | Cystic Fibrosis Foundation | 1959-06-26 | UNITED STATES CORPORATION COMPANY | — | Active | |
| Arkansas | CYSTIC FIBROSIS FOUNDATION | 1959-06-22 | CORPORATION SERVICE COMPANY | ELISE EBERWEINDirectorTERESA L. ELDERDirector19 more | Active | |
| Arizona | CYSTIC FIBROSIS FOUNDATION | 1959-04-24 | — | — | Inactive | |
| Arizona | CYSTIC FIBROSIS FOUNDATION | 1982-10-01 | — | — | Inactive | |
| Arizona | CYSTIC FIBROSIS FOUNDATION | 1987-07-29 | United States Corporation Company | Jessica H. Boyd MDDirectorMichael P Boyle MDOfficer17 more | Active | |
| Colorado | CYSTIC FIBROSIS FOUNDATION | 1979-01-19 | CORPORATION SERVICE COMPANY | — | Active | |
| Connecticut | CYSTIC FIBROSIS FOUNDATION | 1965-04-06 | CORPORATION SERVICE COMPANY | Michael CavadelOfficerDOMINIC J. CARUSODirector24 more | Active | |
| District of Columbia | CYSTIC FIBROSIS Foundation | 1965-04-05 | UNITED STATES CORPORATION COMPANY | Boyle, MD, Michael POfficerSogah, PhD, Dodzie JOfficer16 more | Active | |
| Delaware | CYSTIC FIBROSIS FOUNDATION | 1955-12-16 | CORPORATION SERVICE COMPANY | — | Unknown | |
| Georgia | CYSTIC FIBROSIS FOUNDATION (INC.) | 1959-04-22 | Corporation Service Company | Irena BarisicOfficerMICHAEL P BOYLEOfficer1 more | Active | |
| Hawaii | CYSTIC FIBROSIS FOUNDATION | 1963-07-11 | CORPORATION SERVICE COMPANY | SCHNEIDER MD, ERIC CTrusteeWEINBERG, JOHN STrustee, Director17 more | Active | |
| Iowa | CYSTIC FIBROSIS FOUNDATION | 1965-06-09 | U S CORPORATION CO | STEVEN SHAK MDDirectorKC Bryan WhiteDirector15 more | Active | |
| Kansas | CYSTIC FIBROSIS FOUNDATION | 1965-04-28 | UNITED STATES CORPORATION COMPANY | — | Active | |
| Kentucky | CYSTIC FIBROSIS FOUNDATION | 1965-04-06 | United States Corporation Company | A. D. AtwellOfficerPaul a. MotenkoDirector25 more | Active | |
| Louisiana | CYSTIC FIBROSIS FOUNDATION | 1965-04-06 | UNITED STATES CORPORATION COMPANY | Paul a. MotenkoTrusteeRobert H. NiehausTrustee17 more | Active | |
| Maryland | CYSTIC FIBROSIS FOUNDATION | 1965-04-05 | THE UNITED STATES CORPORATION COMPANY | — | Active | |
| Maine | CYSTIC FIBROSIS FOUNDATION | 1984-11-15 | U. S. CORPORATION COMPANY | — | Active | |
| Michigan | CYSTIC FIBROSIS FOUNDATION | 1964-11-27 | UNITED STATES CORPORATION COMPANY | — | Active | |
| North Carolina | Cystic Fibrosis Foundation | 1959-04-30 | United States Corporation Company | — | Active | |
| North Dakota | CYSTIC FIBROSIS FOUNDATION | 1988-09-06 | THE PRENTICE-HALL CORPORATION SYSTEM, INC | — | Active | |
| Nebraska | CYSTIC FIBROSIS FOUNDATION | 1975-01-14 | UNITED STATES CORPORATION COMPANY | BARRY M GUMP (VICE CHAIRMAN AND TAL)DirectorJEFFREY GOLMAN (TAL)Director101 more | Active | |
| New Hampshire | CYSTIC FIBROSIS FOUNDATION | 1965-04-06 | CORPORATION SERVICE COMPANY | KC Bryan WhiteDirectorDominic J. CarusoDirector17 more | Active | |
| New Mexico | CYSTIC FIBROSIS FOUNDATION | 1959-03-13 | UNITED STATES CORPORATION COMPANY | Carole B Griego MDTrusteeJohn S WeinbergDirector, Trustee36 more | Active | |
| New York | CYSTIC FIBROSIS FOUNDATION | 1960-06-03 | UNITED STATES CORPORATION COMPANY | — | Active | |
| Oregon | CYSTIC FIBROSIS FOUNDATION | 1959-05-20 | UNITED STATES CORPORATION COMPANY | MICHAEL P BOYLE MDOfficerMICHAEL CAVADELOfficer | Active | |
| Rhode Island | Cystic Fibrosis Foundation | 1965-04-22 | PRENTICE-HALL CORP SYSTEM | TERESA L. ELDERDirectorELISE EBERWEINDirector17 more | Active | |
| South Dakota | CYSTIC FIBROSIS FOUNDATION | 1987-01-23 | UNITED STATES CORPORATION COMPANY | — | Active | |
| Texas | CYSTIC FIBROSIS FOUNDATION | 1965-10-11 | UNITED STATES CORPORATION COMPANY | VERA H TWIGGOfficerMARC S GINSKYOfficer17 more | Active | |
| Utah | CYSTIC FIBROSIS FOUNDATION | 1965-04-05 | UNITED STATES CORPORATION COMPANY | PAUL W WHETSELLDirectorPAUL A. MOTENKODirector24 more | Active | |
| Virginia | CYSTIC FIBROSIS FOUNDATION | 1983-08-29 | CORPORATION SERVICE COMPANY | Louis A. DeFalcoOfficerDavid A. MountOfficer17 more | Active | |
| Vermont | CYSTIC FIBROSIS FOUNDATION | 1985-01-08 | UNITED STATES CORPORATION COMPANY | Steven Shak MDDirectorMichael P. Boyle MDOfficer18 more | Active | |
| Washington | CYSTIC FIBROSIS FOUNDATION | 1965-04-15 | CORPORATION SERVICE COMPANY | CAROLE B. GRIEGO MDDirectorDOMINIC J. CARUSODirector17 more | Active | |
| Wyoming | Cystic Fibrosis Foundation | 1975-01-10 | UNITED STATES CORPORATION COMPANY | — | Active | |
Companies and people linked to CYSTIC FIBROSIS FOUNDATION in the state registers through shared officers, a shared registered agent, shared filing contacts or a shared address. Service companies file for many unrelated businesses — a shared agent, address or contact alone does not prove affiliation.
company person group former role
Browse the indexed registries by state, or look up any debtor name free, at UCC lien search.
| State | Permit | Issued | Type | Location | Status | |
|---|---|---|---|---|---|---|
| Texas | 2310231078_185386601-001 | 2023-10-23 | — | 4040 N CENTRAL EXPY, 810, Dallas TX, 4040 | Final CO Issued | |
| Texas | 1907011105_142925238-002 | 2019-07-01 | — | 4040 N CENTRAL EXPY, 730, Dallas TX, 4040 | Final CO Issued | |
| Illinois | 100759865 | 2018-05-15 | PERMIT - NEW CONSTRUCTION | — | COMPLETE | |
| Illinois | 100703251 | 2017-05-17 | PERMIT - NEW CONSTRUCTION | — | COMPLETE | |
| Illinois | 100232718 | 2008-04-16 | PERMIT - REINSTATE REVOKED PMT | — | Unknown | |
| Arizona | 89-SE-2008 | — | — | — | APPROVED | |
| Arizona | 93-SE-2016 | — | — | — | APPROVED | |
| Arizona | 113-SE-2014 | — | — | — | APPROVED | |
| Arizona | 55-SE-2017 | — | — | — | APPROVED | |
| Florida | ABL2006-00018 | — | — | — | Open | |
| State | License / ID | Type | Issued | Status | |
|---|---|---|---|---|---|
| Nebraska | 150854 | — | — | Unknown | |
| Nebraska | 160251 | — | — | Unknown | |
| — | — | Liquor | — | License Issued - Active | |
| Pennsylvania | — | ST Exemption/Charitable | — | Unknown | |
| Case | Filed | Job title | Wage | Worksite | Status | |
|---|---|---|---|---|---|---|
| I-200-25238-267202 | 2025-08-26 | Scientist I | $134,300/yr | Lexington | Certified | |
| I-200-19211-736195 | 2019-08-02 | APPLICATION DEVELOPER | $95,000/yr | Bethesda | CERTIFIED | |
| I-200-19133-823717 | 2019-06-07 | SCIENTIST | $105,000/yr | Lexington | CERTIFIED | |
| I-200-18205-705381 | 2018-07-26 | PRINCIPAL RESEARCH ASSOCIATE | $80,000/yr | LEXINGTON | CERTIFIED | |
| I-200-17011-458069 | 2017-01-12 | PROJECT MANAGER | $100,000/yr | BETHESDA | CERTIFIED | |
| State | Workforce | Hiring sites | Enrolled | Industry | Status | |
|---|---|---|---|---|---|---|
| Maryland | 500 to 999 | 1 | 3/2/2022 | PROFESSIONAL, SCIENTIFIC, AND TECHNICAL SERVICES (54) | Open | |
| Maryland | 500 to 999 | 1 | 10/3/2019 | OTHER SERVICES (EXCEPT PUBLIC ADMINISTRATION) (81) | Terminated | |
| 8 states | 500 to 999 | 13 | 5/21/2012 | OTHER SERVICES (EXCEPT PUBLIC ADMINISTRATION) (81) | Terminated | |
| Registration | Registered | Title | Type | |
|---|---|---|---|---|
| — | — | Cystic Fibrosis Foundation : | B Non-dramatic literary work | |
| — | — | Cystic Fibrosis Foundation Patient Registry Database. | B Non-dramatic literary work | |
Employee-benefit plan filings by CYSTIC FIBROSIS FOUNDATION with the Department of Labor. Employee and revenue figures are modeled estimates derived from retirement-plan participant counts and industry ratios — not official headcount or reported revenue.
| Employees (modeled) | ≈840 · plan year 2024 |
|---|---|
| Est. annual revenue (modeled) | $326.2M |
| Retirement plan assets | $175.4M |
| Benefit plans | 401(k) plan on file |
| Filing history | 26 plan years filed, 1999–2024 |
| Sponsor EIN | 13-1930701 |
| Plan year | Employees (est.) | Participants | Plan assets | Revenue (est.) | 401(k) | |
|---|---|---|---|---|---|---|
| 2024 | ≈840 | 1,088 (756 active) | $175.4M | $326.2M | 401(k) | |
| 2023 | ≈813 | 1,056 (732 active) | $143.4M | $302.6M | 401(k) | |
| 2022 | ≈787 | 1,029 (708 active) | $115M | $285.5M | 401(k) | |
| 2021 | ≈798 | 1,032 (718 active) | $130.3M | $276.5M | 401(k) | |
| 2020 | ≈804 | 1,052 (724 active) | $109.4M | $275M | 401(k) | |
| 2019 | ≈824 | 1,008 (742 active) | $94.5M | $260.3M | 401(k) | |
| 2018 | ≈806 | 955 (725 active) | $71.9M | $241.6M | 401(k) | |
| 2017 | ≈763 | 849 (687 active) | $69.7M | $213.4M | 401(k) | |
| 2016 | ≈696 | 792 (626 active) | $54.7M | $187.6M | 401(k) | |
| 2015 | ≈622 | 716 (560 active) | $48.7M | $163.5M | 401(k) | |
Matched Form 5500 filing records:
| Plan | Plan year | Participants | EIN | |
|---|---|---|---|---|
| CYSTIC FIBROSIS FOUNDATION 401(K) PLAN | — | — | — | |
| CYSTIC FIBROSIS FOUNDATION 401(K) PLAN | — | — | — | |
| CYSTIC FIBROSIS FOUNDATION 401(K) PLAN | — | — | — | |
| CYSTIC FIBROSIS FOUNDATION 401(K) PLAN | — | — | — | |
| CYSTIC FIBROSIS FOUNDATION 401(K) PLAN | — | — | — | |
| CYSTIC FIBROSIS FOUNDATION 401(K) PLAN | — | — | — | |
| CYSTIC FIBROSIS FOUNDATION 401(K) PLAN | — | — | — | |
| CYSTIC FIBROSIS FOUNDATION 401(K) PLAN | — | — | — | |
| CYSTIC FIBROSIS FOUNDATION 401(K) PLAN | — | — | — | |
| CYSTIC FIBROSIS FOUNDATION 401(K) PLAN | — | — | — | |
Federal court records load when you reach this section.
Companies adjacent to CYSTIC FIBROSIS FOUNDATION in the Missouri Secretary of State register, in alphabetical order.
19,712 companies are registered at 221 BOLIVAR STREET, JEFFERSON CITY — shared registered-office and agent addresses are common; a shared address alone does not link businesses.
Netstate aggregates public records from federal, state and municipal sources; records are matched to this company by its registered legal names. Latest source snapshot 2026-08-10. Document getpalm-companies/4820-3886-6370.